February 19, 2012

I'LL GO BALD FOR A GOOD CAUSE

I don't like going bald. In fact, good genes have given me bragging rights to not losing much hair whatsoever. In my sixties, I still have a full head of salt-and-pepper and a full ("too full," Linda would say) beard that is still tinged with the cayenne color of younger days.

So, the choice to voluntarily go bald and beardless is daunting to my vanity. Likewise is the thought of having a head that most closely resembles an oversized honeydew for the four or so months it takes my hair to grow back to fashionable length.


Why, then, tempt fate? The answer is empathy, solidarity. I look at a kid suffering from cancer, and I realize that his or her baldness is not some vain option. It is a price paid in tender years to be spared from a most sinister disease. Dare we even use the word "cured"? With the help of the Almighty and gifted, committed researchers and clinicians, cure is now a daily reality, not an elusive riddle.

I shave my head in unity with those kids for whom a head of hair is a deferred luxury. I shave my head as a conversation piece anytime a person asks a fool such as I why I have made myself look even more foolish. I shave my head because it is precious little I can do to draw complacent people not to avert their eyes, but to look with an open heart upon that suffering little kid.

But, I shave most of all to make money - lots of it. Along with 150+ other Greenvilleans, we will shave ourselves silly, because we find sponsors among benevolent people who know that our baldness is a trigger, a symbol, of deepest compassion for children who have already suffered too much.

We coalesce under the banner of "St. Baldrick's Day," part of an international effort which has raised more than $150 million in the last eleven years, including close to $250,000 right here in the Upstate in the last four. This year we will celebrate St. Baldrick's Day on Sunday, March 18, 1:00-4:00 PM, Downtown next to Larkin's on the River, part of the Peace Center complex. It will truly be a celebration, too. Activities for the kids, shock jocks to keep the party moving, food courtesy of Larkin's. And, of course, six barber chairs to accommodate the 150+ shavees, 15-20% of whom, by the way, are women!

How do you become involved? Become a shavee, of course. Assemble a team. Volunteer. Hold a fundraiser. Sponsor shavees. Don't give until it hurts; give until it feels good! You'll find all the information at
www.stbaldricks.org or by calling 864-271-3715.

Shaving my head and beard does a trip on my vanity, I confess. But the price is negligible or less, compared to those precious little kids who lose their hair as the price of their cure. Join me, please, in balding-out for an honorable cause, or generously supporting someone who is.

February 11, 2012

TEACH US TO NUMBER OUR DAYS . . .

Elsie, Linda's mother, has just died. She had been under hospice care in a nursing home. We knew that the chemo and radiation had lost their efficacy, and that her comfort, "palliation" they call it, was our only priority until death had its way. Her mind had been sharp until the very last, recognizing people, saying "Hi!" and even laughing at an occasional joke. The last days of her life were tragic for the onlookers, but for Elsie they were relatively free of pain, even comforting, surrounded by the ones she loved most.

But, it is not so for everyone in the nursing home. The Alzheimer's unit faces Elsie's corridor. Day after day, the people most severely stricken by the disease are wheeled into the commons area in front of the nurses station. A majority of them stare vacantly into the ether. In a way, they are better off than those who scream or babble or wriggle to get out of their chairs -- still contending with the struggle between wholeness and vacuousness, or so it seems. Every once in a while, a devoted child or spouse comes by to visit a loved one. Most of them speak toward their mom or dad about "normal" everyday things, hoping against hope for a sign of recognition, looking for some awareness in the eyes of their beloved.

A "survivor's disease." That's what they call Alzheimer's. The victim is seemingly impervious, while those nearest and dearest suffer the grief brought about by memories of more vital days -- Dad as Dad. Mom as Mom. This is how we suffered for four years with my father, once upon a time an army colonel, a forensic scientist, a man of letters, relegated to diapers and spoon-feeding by my mother or me. How could a decent man be dealt such injustice?? How could such a devoted wife be put to suffering so much grief?? If any theologian proposes a one-size-fits-all answer to the questions, run in the opposite direction. The ways of God may be inscrutable, but sometimes they are just downright cruel.

Call me narcissistic, but having passed midlife, I do not so much think instinctively of the grief I might suffer at the illness of others. Instead, I have found myself increasingly contemplating how my own possible appointment with Alzheimer's might look. After all, my father and two grandfathers were senile by age 70, just a scant eight years away. I fear my lapses of memory, my inability to find the right word in conversation, the foolish gaffes I commit in doing some trivial task.

I look into their vacant stare and wonder whether that will be my fate a decade from now, their contorted posture in their wheelchairs, their incapacity to recall their children's names, or worse, not even recognize their progeny. I look at them, and I see myself in however many years from now, sapped of my vitality and purported wit, relegated to my own wheelchair and bib at mealtime.

I know what you will tell me: Cherish my days and use them wisely, you would admonish me. Show love and share wisdom before it is too late. Try not to contemplate eventualities over which you have no control. Look positively toward the future. And, of course, you would be right. And, of course, I will do my best. But, none of that diminishes the disquieting feeling that when I behold a person numbed by Alzheimer's, I am looking into a mirror of my own soul.

If there is any escape from that soul-shaking image, it must be in my determination to make today all-meaningful, living honorably, as if there were no more tomorrows to achieve a decent life. So begged the Psalmist, "O Lord, teach us to number our days that we might attain a heart of wisdom." That alone, I am sure, enables us to transcend the fear of senility or of death, itself.